
SPREADING AWARENESS ABOUT RARE DISEASES THROUGH DESCIENCE
You can imagine the loneliness of having a disease that most people have never heard of, that has no treatment, and that is not even being studied by any medical researchers. Many rare diseases are serious. Many are life threatening. Rare diseases are also referred to as orphan diseases. Most are genetic and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30 percent of childre